Alzheimer’s Declared a Public Health Crisis

A new report from the World Health Organization (WHO) and Alzheimer’s Disease International(ADI) calls for nations to make dementia an international public health priority, declaring dementia a public health crisis (Dementia: A Public Health Priority. 2012: WHO Press, World Health Organization, 20 Avenue, Appia, 1211 Geneva 27, Switzerland, ISBN 978 92 4 156445 8).

Unfortunately, incredibly, in this 112 page report and all the media coverage of it, no mention is made of how to fund care for those afflicted with Alzheimer’s!

 

Alzheimer’s Disease – A Rapidly Approaching Medical and Financial Crisis

The odds that you’ll have Alzheimer’s disease are 1 in 8, according to the “2012 Alzheimer’s Disease Facts and Figures” (Alzheimer’s Association:225 N. Michigan Ave., Fl. 17 Chicago, IL 60601-7633).  An estimated 5.4 million Americans currently have Alzheimer’s, 5.2 million of whom are over 65.  And your odds increase to 1 in 2 if you live to age 85.  As the sixth leading cause of death in theUnited States, this tragic disease currently costs over $200 Billion to treat, and that annual cost is expected to rise to $1.1 TRILLION by 2050!  

Where will all that money come from?  Medicare and Medicaid pay for 70% of the current annual cost, and over 15 million Americans provide unpaid care for a person with Alzheimer’s or other dementias.  With each passing year, government funds will become increasingly insufficient to cover this staggering expense, leaving the burden of care on family and friends.  And tragically, even today 800,000 people with Alzheimer’s live alone and as many as half of them have NO caregiver.  We can only imagine how that number will soar with each passing year.

 So what’s the answer?  The good news is that “cognitive impairment” is a valid basis for a claim on all long-term care insurance (LTCi) policies.  So if this tragedy strikes you and you have purchased such a policy, your LTCi will take the burden off of the US government as well as your family and friends.  The choice is yours…

A video is worth 1,000 words

Click here to see a video featuring former journalist Meryl Comer candidly, poignantly describing  how her life was turned upside down because she and her husband were unprepared for his Alzheimer’s diagnosis.

Now, in 180 degree contrast, watch this video illustrating the night and day difference long-term care insurance ownership makes for people and their families.

Are People Clueless About Recognizing Cognitive Impairment?

Here’s a piece by Pamela Fayerman of the Vancouver Sun that ran on January 4, 2011. It’s titled “Why are men so much more clueless about Alzheimer’s Disease?”

Ms. Fayerman writes about how people do not recognize the signs of mild cognitive impairment and Alzheimer’s disease.

I beg to differ with her. I believe she is confusing cluelessness with denial. In fact, here are my posted comments on Ms. Fayerman’s fine piece:

“Thanks for this very useful blog, calling attention to the bewildering disconnect the public seems to enjoy wallowing in. I think the public is not so much clueless as they are in denial. The same “cluelessness” you observe I see on my side of the fence when people are reluctant to talk with me about what would happen if they fell into the 70+% of us who will need long-term care (see “Medicare and You 2011” p. 110: published by the US Department of Health and Human Services).  I will never understand this “cluelessness”/denial. You can give them abundant facts and they seem to rationalize them away. But more often, people refuse my offer to have a conversation about rational, responsible long-term care planning before the event requiring care occurs. I have seen some crazy first-hand examples of denial, where the loved one had flagrant cognitive impairment and the family and loved one refused to admit it, made excuses, or assisted in covering for the loved one. This is why I don’t think the public is clueless. What we are observing is actually denial.

Thanks as well for the reference to Jacqueline Marcell’s book, which I will investigate.”

Margaret’s Story

I wish to offer debts of gratitude to Margaret M for having the courage to share her story with us. Unfortunately, similar situations  happen far more often than they should, mostly because people don’t want to plan. Margaret and I ardently hope that by sharing her story, others will be able to avoid similar circumstances.

“Dear Honey: 

About 18 years ago, we received a mail solicitation for long-term care insurance. My husband said he thought it sounded like a good idea. We responded and made an appointment with an agent who would show us coverage. 

Three days before our appointment, my husband suffered a mini-stroke and became uninsurable. He continued to have mini-strokes. His condition deteriorated. He was eventually diagnosed with Alzheimer’s disease.

 My husband was an avid jogger. One day he went jogging and couldn’t find his way home. At that point, he wanted to move to our retirement home in Louisiana, about 4 ½ hours away. We felt he could do some of his favorite activities there, and would be safer because he wouldn’t have to leave our 54 acres. He had a caregiver. We were able to save some money because the cost of care is lower there. 

That was in February, 2000. I was working full-time, largely to keep us both covered with health insurance. Every weekend, I’d commute back and forth to Louisiana from Houston.

 My husband’s condition continued to deteriorate. He began to hallucinate and became violent, making it impossible for him to remain in our home with a caregiver.   In the Spring of 2006, we moved him into a nursing home back in Houston. By the time he passed away on Thanksgiving Day of 2006, he’d lost 60 pounds and was painfully thin and physically debilitated. 

This whole ordeal lasted about ten years. Alzheimers and similar debilitating diseases cause tremendous emotional stress for the patient and caregiver.    We went through pretty much our entire $650,000 retirement savings paying for his care.  The stress of this  financial burden greatly exacerbates the pain and devastation of losing your loved one. 

People just can’t imagine something like this ever happening to them. They can’t fathom how expensive the cost of care can be. I am sad and concerned about this. This is why I want my story told. I’d like to prevent other families from experiencing the same type of hardship we had. Our lives would have turned out so differently if we’d known about long-term care insurance just a little bit sooner.   I am so glad I own long term care insurance, so that our children will never have to worry about providing care for me, should it be needed in the future.

 Sincerely,

 Margaret M

Houston, TX”